What do you get when you have 400 people with chronic conditions in one room?

It sounds like the set up for a joke doesn’t it? But that’s what we had on June 30th. The very first Self Care Movement Summit in Toronto went off like crazy.

what do you get

People came from far and wide to participate. We had folks drive in from 5 hours away just to be there for the evening.

When you see a large conference room packed tight on a Monday night, you know that there is a real need for this. Folks needed to not only learn about what they are going through and how to deal with their situation, but they also wanted to connect with each other.

Some of the things we addressed were mindfulness, dealing with chronic illness at work, sex, intimacy, and using humour as a tool to help us every day. We had a patient panel that shared stories about what it was like to deal with our different conditions and we even managed to squeeze some laughs out of it.

OK, so we may have tried to cram too much really good content into one evening, but can you blame us? That’s like complaining that a meal has too much food or that somebody gave you too much chocolate or that your birthday present is too big to fit into your car. You get my point.cake

After working with cancer patients and their families for years, one of the most common things that I have heard is that once we are finished our primary care, we often feel lost. That was certainly how I felt after I got over my initial cancer treatment. My physician even looked at me and said “You’re cured” I was expecting triumphant movie music to come in as we hugged in a manly way, but the hug didn’t happen. Instead I thought “Really? I don’t feel cured. Besides, the cancer might be gone but I have this chronic situation to deal with for the REST OF MY LIFE. So, how is that cured?”

That’s what the summit was for. We were all there to talk about what happens now. How do we adjust to our lives in this “new normal”. How do we not just exist but help ourselves to thrive with the capabilities that we have?summit

When several hundred committed, smart and passionate people stand up and start sharing ideas, you feel it. You feel the energy shift from complacency and acceptance of the status quo to hopefulness and possibility. On Monday night a group of patients who were strangers just hours before, shared their wisdom and strategies to help people just like them.

So, back to our original question: What do you get when you have 400 people dealing with chronic conditions in one room?

Answer: A huge amount of courage and hope.

trudeau

Celebrity Fan Moment

Don’t you love when you meet someone famous and they’re more impressive than you thought? I was very excited to meet Margaret Trudeau and I actually got to say hello to her backstage. I am rarely at a loss for words. However, in meeting Margaret, I was virtually tongue tied. When she did her keynote, she spoke with such wit, honesty and vulnerability that I became a fan immediately. The standing ovation she got was proof that she connected with our group.

Many Thanks Margaret!